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Epidemiological Methods in Studies of Symptoms in Advanced Disease
Currently selected selection: Author Bios
Why Study Advanced Disease?
Why Epidemiology?
Incidence and Prevalence
Using Incidence and Prevalence
Definition of a Case
Defining Time, Place, Person
Types of Study Design
Cross-Sectional Studies
Longitudinal Studies
Measurement
Bias
Selection Bias
Measurement Bias
Presenting and Interpreting Results
Practical Example
Calculating Prevalence
Conclusion


Chapter 19: Epidemiological Methods in Studies of Symptoms in Advanced Disease: Author Biographies
         


Photo of Irene HigginsonIrene Higginson is Professor of Palliative Care and Policy at Guy's, King's and St Thomas' School of Medicine, King's College London.

A physician specializing in palliative care and epidemiology, Dr. Higginson completed her medical training at Nottingham University School of Medicine. She was awarded her PhD from the University of London, and is a Fellow of the Faculty of Public Health Medicine, of the Royal College of Physicians, UK.

Palliative care is a specialty that cares for patients with advanced, incurable conditions, providing expertise in the management of symptoms, supporting distressed patients and families, co-ordinating complex social care, promoting patient choice at the end of life and support in bereavement.

Dr. Higginson is the founding professor of her current department, established in 1996. The department oversees research programmes investigating the needs of patients and families and evaluating care and treatments, teaching of medical students and Masters and PhD students, and clinical services in King's College and St Thomas' Hospitals.

Prior to her current appointment, from 1992-6, Irene Higginson was senior lecturer in the Health Services Research Unit at the London School of Hygiene and Tropical Medicine and Director of Research and Development in Kensington, Chelsea and Westminster Health Authority. Prior to that she worked in St Joseph's Hospice, Hackney; University College London; University College Hospital; and the Bloomsbury Palliative Care Team, London, in a range of clinical and academic posts.

Irene Higginson has published widely on palliative care, quality of life measurement, and evaluation of services and therapies, in scientific journals and in textbooks. She has developed two tools used widely in the UK and many other countries to help in the assessment of patients and families and in the quality of care. She serves on the boards of journals and of medical grant awarding bodies in UK, USA, Italy, Canada, Germany, Australia, Spain, Ireland, Argentina.

Photo of Massimo ConstantiniMassimo Constantini, a physician specializing in oncology since 1985, is a senior epidemiologist in the Unit of Clinical Epidemiology and Trials at the National Cancer Institute of Genoa (Italy) since 1991. His research interests are in the areas of palliative care, quality of life, and psycho-oncology. From 2002 hehas been medical director of the Genoa Hospice. In the area of palliative care, his recent research activities have focused on studying multidimensional problems of terminal cancer patients, and on investigating the effect of palliative care services on quality of care. His research efforts in quality of life research have been devoted toward developing and validating new tools, and in promoting and coordinating randomised clinical trials with quality of life as outcome.

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